Hearts Line – Telling friends what was going on meant laying our hearts on the line. Living with the unknown, knowing a chronic illness was sucking the life out of us both — it was too much to bear. Hearts Line is about loving the line of life with a chronic illness. Hearts Line. It’s what carries us forward.
2 years ago – Crowd Funding – Honesty and Fear
We became transparent. We told the truth. Chronic Illness was killing us. We had few options.
Was it worth it? I often wonder.
After 13 years of chronic illness, some years better than others, but a constant chasing the dragon, I know it was worth it. Knowing the dragon by name, calming it’s flames, and constantly seeking ways to survive with its crazy constant surprises .. it means we live with a dragon. Better the beast you know, right? We’d chased doctors for 13 years. From the day after my Dad died until today, Rick’s fought this demon and it’s invisible, unkind, unpredictable, and constantly changing and challenging.
12 Step Principles applied to daily life with a chronic illness such as CFS / ME
And yet, without the tools of the program, there is no surviving this. The first principle I had to repeat daily was that I didn’t cause it, I can’t control it, and I can’t cure it. It’s so important. Remembering this meant sanity. It meant I was not in charge of his recovery, I could help, I could guide, but ultimately, it’s not in our control.
The three c’s are as important in chronic illness as they are in accepting an addiction. So are the three A’s — Awareness, Acceptance and then Action. Until these are grasped, there is no serenity, no mindful awareness, no appropriate and timely action. Rushing into solutions can often cause more problems.